We use your data to build datasets to enable scientific research that we hope will enhance human understanding of mental health, and most importantly to directly empower interventions. Scientific breakthroughs are often based on collaboration, and that depends on having a common data set. We are thankful and thrilled that you want to help us.
We currently collect messages posted publicly to family and friends on social media networks like Facebook, Twitter, and Instagram (not private or direct messages), wearable sensor data like FitBit, and workout data like Runkeeper. We don't cover every social media platform and data source yet, but we are working to expand what can be donated. We plan to expand the types of data you can donate in the future (to include things like email). If you sign up, we will update you as we add other networks and data sources.
Connect as many networks as possible and complete the questionnaire. There's no data like more data! The more networks you can connect, the more useful your data is to us. Facebook data is useful, but it only paints part of the picture. Facebook and Fitbit is better; Facebook, Twitter, Instagram, and Fitbit is better still. Our algorithms depend on having many views on a person's life, each additional source makes your donation more useful.
That's only half the story though, knowing more about your mental health is critical to understanding what the data is showing. Filling out the questionnaire as best you can will make your donation most effective.
Yes! Scientific studies and algorithms alike need a comparison group to highlight what is important and relevant. In particular, when someone who matches your demographics is challenged by a mental health condition, your data provides an invaluable point of comparison. Your data empowers solutions and insight too.
I am a mental health advocate, and I use social media for some of my advocacy. Do you still want my data?
Thank you for your work! Yes, we still want your data. Don't worry, we have some special considerations for those involved in advocacy to prevent our models from being confused by your social media posts. Your data also gives us a unique and quantitative assessment of how we fare in the fight against stigma.
No. We use this data only to better understand how mental health can be quantified by analysis of the data each of us generates every day. Whenever possible, we opt for the most restrictive set of authorizations required to read the data needed for this research. We will never seek the ability to add content to your social media account.
Maybe. If you have access to a computer or mobile device where the loved one is already logged in, just access your OurDataHelps account from that device and link the accounts. Without the password to the account or such a device, you cannot grant us access to the person's data. We would be honored to add them to our wall of hope, and you could fill out the questionnaire about their life, if you wished.
To calculate age. If you don’t feel comfortable, change the day and provide only an accurate month/year. The ability to break the datasets up into accurate groups by age is critical.
Not yet, but we are working on it.
Quite possibly, in time. We are working to add more networks and we’ll send out an email as we get those up and working. Feel free to email us at firstname.lastname@example.org and let us know what you’d like us to be able to connect.
Very infrequently. We also have too much email. We expect to send you only a handful of emails per year. For more frequent updates, you can subscribe to our mailing list. We will share major accomplishments made possible by your data. We will share major milestones and events. We will share beta-testing offers. We offer you control as part of the signup process to control what we will contact you about. If you'd rather we never contact you again, we will absolutely respect that — and we will take this opportunity here to thank you for your data donation then.
We do. Meaning Qntfy does — from our own pockets.
No. Your data will be used to test models we are working on to better understand mental well-being. Those models may one day be used in products. The data you donate will primarily be used by various researchers to make new discoveries about mental health that Qntfy won’t benefit from directly. We want the future of mental health to get here as soon as possible, this is just us doing our part.
We are scientists, advocates and researchers interested in shaping the future of mental health research with the ability to make it happen. Usable data is hard to come by. The more sensitive the subject, often the more difficult it is to get helpful data. We hope this research will lead to discoveries that lead to breakthrough treatments. It is possible that if we get enough individual donors that the potential of having access to the data alone could attract interest from other prominent researchers.